Prof Galina Velikova

Galina

Galina Velikova

BMBS, PhD

Professor of Psycho-social and Medical Oncology, University of Leeds, Cancer Research UK Centre and St James’s Institute of Oncology, Leeds Teaching Hospitals, Leeds

Phone: +44 (0)113 206 7917
Email: g.velikova@leeds.ac.uk

Academic Secretary: Tina Dixon
Phone: +44 (0)113 206 7592
Email: T.Dixon@leeds.ac.uk

Galina joined the group in 1997 to work on a PhD project on quality of life measurement in daily oncology practice, having trained in medicine and internal diseases in Bulgaria and in medical oncology in the Yorkshire Oncology training programme.

 

Galina has a Cancer Research UK programme grant in psycho-social oncology to continue research in implementation of routine measurement of quality of life in oncology practice and an NIHR programme development grant to develop a web-based electronic system for collecting patient reported data on toxicity and adverse events during cancer treatment, integrating this with electronic patient records and generating alerts for clinicians. She was also involved in the successful bid to host one of the National Cancer Research Institute (NCRI) Supportive and Palliative Care Research Collaboratives. She is a Consultant in Medical Oncology and holds the chair of Psychosocial and Medical Oncology at the University of Leeds. Her clinical work focuses on chemotherapy treatment of patients with breast cancer, palliative chemotherapy and supportive care.

 

The main focus of Galina’s research is on studying the effects on medical decision-making of collecting and providing quality of life information, the impact on physician-patient interactions and developing training for physicians on interpreting, using and responding to quality of life measures in individual patients and the collection of patient reported outcomes data. The regular collection of questionnaire information from patients is performed with touch-screen computers in oncology clinics with immediate print-out of results in a graphic format. Galina is also involved in the quality of life sub-studies of large national trials in breast cancer. She is involved in the implementation in NHS, locally of holistic assessment for cancer patients (NICE supportive & palliative care guidelines) & nationally contributes to the National Cancer Survivorship Initiative.

 

Galina was chair of the British Psychosocial Oncology Society (BPOS) until the end of 2010 and she is a member of the UK National Cancer Research Institute Psychosocial Oncology Clinical Studies Development Group, chairing its sub group on the impact of side effects of treatments and interventions. She has been a member of the European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group and was its chair until September 2011. She is also a former Board member of the International Society for Quality of Life Research (ISOQOL) and former chair of the British Psychosocial Oncology Society (BPOS).

 

 

Research Interests
Papers
Presentations
Books
Research Grants
Teaching
Research Students
Professional Activities

 

 

Research Interests

 

Galina’s research interests include

 

  • Implementation of routine measurement of patient reported outcomes (PROs) and quality of life in routine oncology practice
  • Use of electronic methods to collect patient reported data on toxicity and adverse events during cancer treatment and integrating this with electronic patient records
  • Trials of systemic therapy in breast cancer

Papers

 

Papers

in press

Ashley, L., Keding, A., Brown, J., Velikova, G., & Wright, P. (in press). Score equivalence of electronic and paper versions of the Social Difficulties Inventory (SDI-21): a randomised crossover trial in cancer patients. Quality of Life Research.

 

2012

Ashley, L., Jones, H., Velikova, G., & Wright, P. (2012). Cancer patients’ and clinicians’ opinions on the best time in secondary care to approach patients for recruitment to longitudinal questionnaire-based research. Supportive Care in Cancer, 20(12):3365-3372. DOI: 10.1007/s00520-012-1518-4

2011

Ashley, L., Jones, H., Forman, D., Newsham, A., Brown, J., Downing, A., Velikova, G., & Wright, P. (2011). Feasibility test of a UK-scalable electronic system for regular collection of patient-reported outcome measures and linkage with clinical cancer registry data: The electronic Patient-reported Outcomes from Cancer Survivors (ePOCS) system. BMC Medical Informatics and Decision Making, 11:66. DOI: 10.1186/1472-6947-11-66

Ashley, L., Jones, H., Thomas, J., Forman, D., Newsham, A., Morris, E., Johnson, O., Velikova, G., & Wright, P. (2011). Integrating cancer survivors’ experiences into UK cancer registries: design and development of the ePOCS system (electronic Patient-reported Outcomes from Cancer Survivors). British Journal of Cancer, 105: S74-S81. DOI: 10.1038/bjc.2011.424

Gundy CM, Fayers PM, Groenvold M, Petersen MA, Scott NW, Sprangers MA, Velikova G, Aaronson NK. Comparing higher order models for the EORTC QLQ-C30. Quality of Life Research. 2011 Dec 21. [Epub ahead of print] PubMed PMID: 22187352.

Taylor S, Harley C, Ziegler L, Brown J, Velikova G. Interventions for sexual problems following treatment for breast cancer: a systematic review. Breast Cancer Research & Treatment. 2011 Dec;130(3):711-24. Epub 2011 Sep 9. PubMed PMID: 21904884.

Arraras JI, Greimel E, Chie WC, Sezer O, Bergenmar M, Costantini A, Young T, Kuljanic-Vlasic K, Velikova G; on behalf of the European Organisation for Research and Treatment of Cancer Quality of Life Group. Cross-cultural differences in information disclosure evaluated through the EORTC questionnaires. Psycho-oncology. 2011 Nov 3. doi: 10.1002/pon.2088. [Epub ahead of print] PubMed PMID: 22052786.

Harley C, Takeuchi E, Taylor S, Keding A, Absolom K, Brown J, Velikova G. A mixed methods approach to adapting health-related quality of life measures for use in routine oncology clinical practice. Quality of Life Research. 2011 Aug 6. [Epub ahead of print] PubMed PMID: 21822736.

Newsham AC, Johnston C, Hall G, Leahy MG, Smith AB, Vikram A, Donnelly AM, Velikova G, Selby PJ, Fisher SE. Development of an advanced database for clinical trials integrated with an electronic patient record system. Computers in Biology and Medicine. 2011 Aug;41(8):575-86. Epub 2011 Jun 23. PubMed PMID: 21703607.

Takeuchi EE, Keding A, Awad N, Hofmann U, Campbell LJ, Selby PJ, Brown JM, Velikova G. Impact of patient-reported outcomes in oncology: a longitudinal analysis of patient-physician communication. Journal of Clinical Oncology. 2011 Jul 20;29(21):2910-7. Epub 2011 Jun 20. PubMed PMID: 21690465.

Rowen D, Brazier J, Young T, Gaugris S, Craig BM, King MT, Velikova G. Deriving a preference-based measure for cancer using the EORTC QLQ-C30. Value in Health. 2011 Jul-Aug;14(5):721-31. PubMed PMID: 21839411.

Arraras JI, Greimel E, Chie WC, Sezer O, Bergenmar M, Costantini A, Young T, Kuljanic K, Velikova G; European Organisation for Research and Treatment of Cancer Quality of Life Group. Information disclosure to cancer patients: EORTC QLQ-INFO25 questionnaire. Expert Review of Pharmacoeconomics and Outcomes Research. 2011 Jun;11(3):281-6. PubMed PMID: 21671697.

Absolom K, Holch P, Pini S, Hill K, Liu A, Sharpe M, Richardson A, Velikova G; NCRI COMPASS Supportive and Palliative Care Research Collaborative. The detection and management of emotional distress in cancer patients: the views of health-care professionals. Psycho-oncology. 2011 Jun;20(6):601-8. doi: 10.1002/pon.1916. Epub 2011 Feb 8. PubMed PMID: 21308857.

Claassens L, van Meerbeeck J, Coens C, Quinten C, Ghislain I, Sloan EK, Wang XS, Velikova G, Bottomley A. Health-related quality of life in non-small-cell lung cancer: an update of a systematic review on methodologic issues in randomized controlled trials. Journal of Clinical Oncology. 2011 May 20;29(15):2104-20. Epub 2011 Apr 4. Review. PubMed PMID: 21464420; PubMed Central PMCID: PMC3138547.

Hodges LJ, Walker J, Kleiboer AM, Ramirez AJ, Richardson A, Velikova G, Sharpe M. What is a psychological intervention? A metareview and practical proposal. Psycho-oncology. 2011 May;20(5):470-8. doi: 10.1002/pon.1780. Review. PubMed PMID: 20878870.

Giesinger JM, Aa Petersen M, Groenvold M, Aaronson NK, Arraras JI, Conroy T, Gamper EM, Kemmler G, King MT, Oberguggenberger AS, Velikova G, Young T, Holzner B; European Organisation for Research and Treatment of Cancer Quality of Life Group (EORTC-QLG). Cross-cultural development of an item list for computer-adaptive testing of fatigue in oncological patients. Health and Quality of Life Outcomes. 2011 Mar 29;9:19. PubMed PMID: 21447160; PubMed Central PMCID: PMC3078839.

Abhyankar P, Bekker HL, Summers BA, Velikova G. Why values elicitation techniques enable people to make informed decisions about cancer trial participation. Health Expectations. 2011 Mar;14 Suppl 1:20-32. doi: 10.1111/j.1369-7625.2010.00615.x. PubMed PMID: 20629765.

Taylor S, Harley C, Campbell LJ, Bingham L, Podmore EJ, Newsham AC, Selby PJ, Brown JM, Velikova G. Discussion of emotional and social impact of cancer during outpatient oncology consultations. Psycho-oncology. 2011 Mar;20(3):242-51. doi: 10.1002/pon.1730. PubMed PMID: 20336633.

Cocks K, King MT, Velikova G, Martyn St-James M, Fayers PM, Brown JM. Evidence-based guidelines for determination of sample size and interpretation of the European Organisation for the Research and Treatment of Cancer Quality of Life Questionnaire Core 30. Journal of Clinical Oncology. 2011 Jan 1;29(1):89-96. Epub 2010 Nov 22. Review. PubMed PMID: 21098316.

Wright P, Smith AB, Keding A, Velikova G. The Social Difficulties Inventory (SDI): development of subscales and scoring guidance for staff. Psycho-oncology. 2011 Jan;20(1):36-43. PubMed PMID: 20186841.

Holch P, Absolom KL, Pini S, Hill KM, Liu A, Sharpe M, Richardson A, Hosker C & Velikova G. The views of oncology professionals on the use of antidepressants in cancer patients: A qualitative interview study. British Medical Journal Supportive and Palliative Care 2011 (In Press)

2010

Smith AB, Wright P, Selby P, Velikova G. Measurement invariance of the 16-item social distress scale. Quality of Life Research. 2011 May;20(4):507-11. Epub 2010 Nov 5. PubMed PMID: 21052848.

Petersen MA, Groenvold M, Aaronson NK, Chie WC, Conroy T, Costantini A, Fayers P, Helbostad J, Holzner B, Kaasa S, Singer S, Velikova G, Young T. Development of computerized adaptive testing (CAT) for the EORTC QLQ-C30 physical functioning dimension. Quality of Life Research. 2011 May;20(4):479-90. Epub 2010 Oct 23. PubMed PMID: 20972628.

Hanif N, Dharni N, Smith A, Chattoo S, Velikova G, Bradley C, Stark D, Wright P. Translation of the Social Difficulties Inventory (SDI-21) into three South Asian languages and preliminary evaluation of SDI-21(Urdu). Quality of Life Research. 2011 Apr;20(3):431-8. Epub 2010 Oct 15. PubMed PMID: 20953715.

Fagerlind Hanna, Bergström Ida, Kettis Lindblad Åsa, Velikova Galina, Glimelius Bengt, Ring Lena. Communication analysis in oncology care. Performance of a combination of a content analysis system and a global scale. Psycho-Oncology July 2010 [Epub ahead of print] (DOI: 10.1002/pon.1808)

Wright P, Bingham L, Taylor S, Hanif N, Podmore E and Velikova G. Managing social difficulties: roles and responsibilities of patients and staff. Psycho-Oncology 2010. [Epub ahead of print] DOI: 10.1002/pon.1858.

Velikova G. Patient benefits from psychosocial care: screening for distress and models of care (editorial). Journal of Clinical Oncology Nov 2010, 28(33): 4871-4873

Arraras JI, Greimel E, Sezer O, Chie W-C, Bergenmar M, Costantini A, Young T, Kuljanic-Vlasic K, Velikova G on behalf of the European Organisation for Research and Treatment of Cancer Quality of Life Group. An international validation study of the EORTC QLQ-INFO25 questionnaire: an instrument to assess the information given to cancer patients. European Journal of Cancer. 2010 Oct; 46(15): 2726-38.

Velikova G, Keding A, Harley C, Cocks K, Booth L, Smith AB, Wright P, Selby PJ and Brown JM. Patients report improvements in continuity of care when quality of life assessments are used routinely in oncology practice: Secondary outcomes of a randomised controlled trial. European Journal of Cancer 46 (13), 2381-2388, Sep 2010

Halkett G, Aoun S, Hayne D, Lund J-A, Gruen A, Villa J, Livi L, Arcangeli S, Velikova G, Spry N. On behalf of EORTC Quality of Life Group. EORTC radiation proctitis-specific quality of life module – Pre-testing in four European countries. Radiotherapy and Oncology, Volume 97, Issue 2, Nov 2010, Pages 294-300. (DOI: 10.1016/j.radonc.2010.04.001)

Petersen MA, Groenvold M, Aaronson NK, Chie W-C, Conroy T, Costantini A, Fayers P, Helbostad J, Holzner B, Kaasa S, Singer S, Velikova G & Young T on behalf of the EORTC Quality of Life Group. Development of computerized adaptive testing (CAT) for the EORTC QLQ-C30 dimensions- general approach and initial results for physical functioning. European Journal of Cancer, 46(8), pp 1352-1358, May 2010.

Smith AB, Fallowfield LJ, Stark DP, Velikova G and Jenkins V. A Rasch and confirmatory factor analysis of the General Health Questionnaire (GHQ)-12. Health and Quality of Life Outcomes, 8: 45, 2010. (DOI:10.1186/1477-7525-8-45)

2009

Smith AB, Rush R, Fallowfield L, Velikova G, Sharpe M. Rasch Fit Statistics and Sample Size: A comparison of dichotomous and polytomous data. BMC Medical Research Methodology 2008, 8:33 (29 May 2008). (DOI:10.1186/1471-2288-8-33)

Harris K, Chow E, Zhang L, Velikova G, Bezjak A, Wu J, Barton M, Sezer O, Eek R, Shafiq J, Yee A, Clemons M, Brundage M, Hoskin P, van der Linden Y, Johnson CD, Bottomley A, On behalf of the EORTC Quality of Life Group. Patients’ and health care professionals’ evaluation of health-related quality of life issues in bone metastases. European Journal of Cancer, 45(14), 2510-2518, 2009.

Podmore EJ, Bingham LJ, Roberts KM, Selby PJ, Wright P and Velikova G. Routine assessment of social difficulties in cancer patients: are we opening Pandora’s box? Supportive Care in Cancer, 17(11), pp 1425-1432, 2009.

Harley, C, Adams, J, Booth, L, Brown, JMB, Selby, P, Velikova, G. Patient Experiences of Continuity of Cancer Care: Development of a new Medical Care Questionnaire (MCQ) for Oncology Outpatients. Value In Health,12(8), pp 1180-1186,

Dewolf L, Koller M, Velikova G, Johnson C, Scott N, Bottomley A on behalf of the EORTC Quality of Life Group. EORTC Quality of Life Group Translation Procedure. Published on EORTC Quality of Life Group website (http://groups.eortc.be/qol/translations.htm), March 2009

Waters S, Gillibrand A, Berry H, Kumar S, Velikova G, Dodwell D, Perren T. Dose-Finding Study of Weekly Docetaxel, Epirubicin and Capecitabine, as First-Line Treatment in Advanced Breast Cancer. Cancer Chemotherapy and Pharmacology, 64(2), 407-412, 2009

Chow E, Hird A, Velikova G, Johnson C, Dewolf L, Bezjak A, Wu J, Shafiq J, Sezer O, Kardamakis D, van der Linden Y, Ma B, Castro M, Arnalot PF, Ahmedzai S, Clemons M, Hoskin P, Yee A, Brundage M, Bottomley A on behalf of the EORTC Quality of Life Group. The European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire for Patients with Bone Metastases: the EORTC QLQ-BM22. European Journal of Cancer, 45 (7), 2009

Smith AB, Rush R, Wright P, Stark D, Velikova G, Sharpe M. Validation of an Item Bank for Detecting & Assessing Psychological Distress in Cancer Patients. Psycho-Oncology 2009, 18 (2):195-9

2008

Smith AB, Rush R, Fallowfield LJ, Velikova G and Sharpe M. Rasch fit statistics and sample size considerations for polytomous data. BMC Medical Research Methodology, 8:33, 2008. DOI:10.1186/1471-2288-8-33

Cocks K, King MT, Velikova G, Fayers PM, Brown JM. Quality, interpretation and presentation of EORTC QLQ-C30 data in randomised controlled trials. European Journal of Cancer 2008, 44: (13), 1793-98

Wright P, Marshall L, Smith AB, Velikova G, Selby P. Measurement and interpretation of social distress using the Social Difficulties Inventory (SDI). European Journal of Cancer 2008;44:1529-35

Dasgupta D, Smith AB, Hamilton-Burke W, Prasad KR, Toogood GJ, Velikova G, Lodge JPA. A long term prospective longitudinal study of quality of life following liver resection for hepatobiliary malignancies. British Journal of Surgery. 2008 Jul; 95(7):845-54

Velikova G, Awad N, Coles-Gale R, Wright EP, Brown JM and Selby PJ. The clinical value of quality of life assessment in oncology practice – a qualitative study of patient and physician views. Psycho-oncology 2008 17(7):690-8

2007

Cocks K , Cohen D, Wisløff F, Sezer O, Lee S, Hippe E, Gimsing P, Turesson I, Hajek R, Smith A, Graham L, Phillips A, Stead M, Velikova G, Brown J on behalf of EORTC Quality of Life Group. An international field study of the reliability and validity of a disease-specific questionnaire module (the QLQ-MY20) in assessing the quality of life of patients with multiple myeloma. European Journal of Cancer, 2007, 43 (11),1670-1678

Smith AB, P Wright, PJ Selby and G Velikova. A Rasch and factor analysis of the Functional Assessment of Cancer Therapy – General (FACT-G). Health and Quality of Life Outcomes, 2007, 5:19

Smith AB, Wright P, Selby P, Velikova G. Measuring social difficulties in routine patient centred assessment: A Rasch analysis of the Social Difficulties Inventory. Quality of Life Research 2007;16:823-831

Smith AB, Rush R, Velikova G, Wall L, Wright EP, Stark D, Selby P, Sharpe M. The initial development of an item bank to assess and screen for psychological distress in cancer patients. Psycho-oncology. 2007, 16: 724-732

Velikova G, Weis J, Hjermstad MJ, Kopp M, Morris P, Watson M, Sezer O; EORTC Quality of Life Group. The EORTC QLQ-HDC29: A supplementary module assessing the quality of life during and after high-dose chemotherapy and stem cell transplantation. European Journal of Cancer. 2007, 43: 87-94

Stein K, Sugar C, Velikova G and Stark D. Putting the ‘Q’ in quality adjusted life years (QALYs) for advanced ovarian cancer – An approach using data clustering methods and the internet. European Journal of Cancer 2007, 43(1):104-13.

Arraras JI, Kuljanic-Vlasic K, Bjordal K, Yun HY, Efficace F, Holzner B, Mills J, Greimel E, Krauss O, Velikova G. EORTC QLQ-INFO26: A questionnaire to assess information given to cancer patients. A preliminary analysis in eight countries. Psycho-oncology 2007 Mar;16(3):249-54.

2006

Smith AB, Velikova G, Wright EP, Lynch P and Selby PJ. Computer-assisted questionnaires may facilitate collection of quality-of-life (QOL) data: At a cost. Computers in Human Behaviour 2006, 22: 991-1000.

Clarke SA, Booth L, Velikova G, Hewison J. Social Support: Gender Differences in Cancer Patients in the United Kingdom. Cancer Nursing 2006 Jan;29(1):66-72.

Chow E, Hoskin P, van der LY, Bottomley A, Velikova G. Quality of life and symptom end points in palliative bone metastases trials. Clinical Oncology, 2006 Feb;18(1):67-9.

Smith AB, Wright EP, Rush R, Stark DP, Velikova G and Selby PJ. Rasch Analysis of the Dimensional Structure of the Hospital Anxiety and Depression Scale. Psycho-oncology 2006, 15(9):817-27

2005

Wright P, Smith A, Booth L, Winterbottom A, Kiely M, Velikova G and Selby P, Psychosocial difficulties, deprivation and cancer: three questionnaire studies involving 609 cancer patients, British Journal of Cancer (2005) 93, 622-626

Petersen MA, Groenvold M, Aaronson N, Blazeby J, Brandberg Y, de Graeff A, Fayers P, Hammerlid E, Sprangers M, Velikova G & Bjorner JB for the European Organisation for Research and Treatment of Cancer Quality of Life Group. Item response theory was used to shorten EORTC QLQ-C30 scales for use in palliative care. Journal of Clinical Epidemiology 2005, 59:36-44

Bottomley A, Flechtner H, Efficace F, Vanvoorden V, Coens C, Therasse P, Velikova G, Blazeby J and Greimel E. On behalf of the EORTC Data Center and Quality of Life Group. Health Related Quality Of Life Outcomes in Cancer Clinical Trials. European Journal of Cancer 2005: 41, 1697-1709

Velikova G and Wright EP. Chapter 4. Interpreting QOL of individuals and groups: Individual patient monitoring. In “Quality of life assessment in clinical trials” (2 edition); Eds P Fayers and R Hays; Oxford University press; Oxford, new York, 2005, pp-291-306

2004 and earlier

Arraras JI, Wright S, Greimel E, Holzner B, Kuljanic-Vlasic K, Velikova G et al. Development of a questionnaire to evaluate the information needs of cancer patients: the EORTC questionnaire. Patient Education and Counselling 2004; 54(2):235-241.

Velikova G. Use of electronic quality of life applications in cancer research and clinical practice. Expert Review of Pharmacoeconomics Outcomes Research 2004; 4(4):403-411.

Velikova G, Forman D. Breast cancer survival in ethnic minority groups. Advances in Breast Cancer 2004; 1(3):5-9.

Velikova G, Booth L, Johnston C, Forman D, Selby P. Breast cancer outcomes in South Asian population of West Yorkshire. British Journal of Cancer 2004; 90 (10): 1926-1932

Velikova G, Booth L, Smith AB, Brown PM, Lynch P, Brown JM, Selby PJ. Measuring Quality of Life in Routine Oncology Practice Improves Communication and Patient Well-being – A Randomized Controlled Trial. Journal of Clinical Oncology, 2004; 22 (4): 714-724

Wright EP, Selby PJ, Crawford M, Gillibrand A, Johnston C, Perren TJ, Rush R, Smith A, Velikova G, Watson W, Gould A, Cull A. Feasibility and Compliance of Automated Measurement of Quality of Life in Oncology Practice. Journal of Clinical Oncology, 2003; 21 (2): 374-382.

Velikova G, Brown JM, Smith AB, Selby PJ. -Computer-based quality of life questionnaires may contribute to doctor-patient interactions in oncology. British Journal of Cancer, 2002; 86(1):51-9.

Stark D, Kiely M, Smith A, Velikova G, House A, Selby P. Anxiety disorders in cancer patients: their nature, associations, and relation to quality of life. Journal of Clinical Oncology 2002; 20: 3137-3148

Smith AB, Selby PJ, Velikova G, Stark D, Wright EP, Gould A, Cull A. Factor analysis of the Hospital Anxiety and Depression Scale from a large cancer population. Psychology and Psychotherapy-Theory Research and Practice, 2002; 75: 165-176

Velikova G, Wright P, Smith AB, Stark D, Perren T, Brown J and Selby P. Self-reported Quality of Life of Individual Cancer Patients – Concordance of Results with Disease Course and Medical Records. Journal of Clinical Oncology, 2001, 19 (7), 2064-2073

Cull A, Gould A, House A, Smith A, Strong V, Velikova G, Wright P, Selby P. Validating automated screening for psychological distress by means of computer touchscreens for use in routine oncology practice. British Journal of Cancer, 2001;85(12):1842-9.

Velikova G, Wright EP, Smith AB, Cull A, Gould A, Forman D, Perren T, Stead M, Brown J and Selby PJ. Automated collection of quality of life data: a comparison of paper and computer touch-screen questionnaires. Journal of Clinical Oncology, 1999, 17 (3), 998-1007

Stead ML, Brown JM, Velikova G, Kaasa S, Wisløff F, Child JA, Hippe E, Hjorth M, Sezer O and Selby P for the European Organisation for Research and Treatment of Cancer Quality of Life Study Group. Development of an EORTC Questionnaire Module to be used in Health – Related Quality of Life assessment for patients with multiple myeloma. British Journal of Haematology, 1999, 104, 605-611

Velikova G. The association of quality of life and survival in cancer patients. Progress in Palliative Care, 1999,7 (4), 171-175

Velikova G, Stark D and Selby P. Quality of life instruments in oncology. European Journal of Cancer, 1999, 35 (11), 1571-1580

Velikova G, Banks RE, Gearing A, Hemingway I, Forbes MA, Preston SR, Hall NR, Jones M, Wyatt J, Miller K, Ward U, Al-Maskatti J, Singh SM, Finan PJ, Ambrose NS, Primrose JN, Selby PJ. Serum concentrations of soluble adhesion molecules in patients with colorectal cancer. British Journal of Cancer, 1998, 77 (11), 1857-1863

Velikova G, Banks RE, Gearing A, Hemingway I, Forbes MA, Preston SR, Jones M, Wyatt J, Miller K, Ward U, Al-Maskatti J, Singh SM, Ambrose NS, Primrose JN, Selby PJ. Circulating soluble adhesion molecules E-cadherin, E-selectin, intercellular cell adhesion molecule – 1 (ICAM-1) and vascular cell adhesion molecule – 1 (VCAM-1) in patients with gastric cancer. British Journal of Cancer, 1997, 76 (11), 1398-1404

Joffe JK, Banks RE, Forbes MA, Hallam S, Jenkins A, Patel PM, Hall GD, Velikova G, Crossley A, Johnson PWM, Whitcher JT, Selby PJ. Phase II study of Interferon -alpha, Interleukin-2 and 5-Fluorouracil In Advanced Renal Carcinoma – Clinical data and laboratory evidence of protease activation. British Journal of Urology 1996, 77, 638-649

Velikova G, Selby P, Snaith P, Kirby P. The Relationship of Cancer Pain to Anxiety. Psychotherapy and Psychosomatics, 1995: 63: 181-184

In Bulgarian

Velikova G, Tzekov Chr. Quality of life of cancer patients as a criterion for treatment effectiveness. Savremenna Medicina XLII, 1991, vol.2, p. 3-6

Velikova G, Taskova V, Mircheva I, Kozhuharova M, Dyulgerov G. Prognostic factors in patients with metastatic breast cancer on chemo-hormonotherapy. Annual of the Oncological Dispensary-Varna, vol. 1, 1992, 172-182

Mircheva I, Velikova G. Data base for registration of patients with breast cancer. Oncologia 26, 1992, No 1-2, 62 (Abstract)

Velikova G, Tzekov Chr, Taskova V, Dimitrova T, Mircheva I. Assessment of quality of life of advanced breast cancer patients – prognostic significance. Oncologia 26,1992, No 3-4, 104-106

Velikova G, Tzekov Chr. Treatment of cytostatics induced vomiting. Oncologia 26, 1992, No 3- 4, 86-89

 

Presentations

HRQOL measures in daily practice- experience with EORTC tools: Research programme in Leeds. (Invited presentation) 2nd EORTC Symposium: Quality of Life, Symptom Research and Patient Reported Outcomes in Cancer Clinical Trials, 7-9 September 2011, Brussels, Belgium.

The outcomes reported by patients are as important as clinical indicators. (Invited presentation) Implementing Improving Outcomes: A Strategy for Cancer conference, 24 May 2011, London, UK.

Impact of Patient Reported Outcomes in Oncology – A Longitudinal Analysis of Patient – Doctor Communication. (Oral presentation) International Society for Quality of Life Research (ISOQOL) Annual Conference, 26-29 October 2011, Denver, USA.

A mixed methods approach to adapting health related quality of life measures for use in routine oncology clinical practice. (Oral presentation) International Society for Quality of Life Research (ISOQOL) Annual Conference, 26-29 October 2011, Denver, USA.

Training oncologists in the use of patient reported outcome data in clinical practice: The development of a facilitation aid. (Poster presentation) International Society for Quality of Life Research (ISOQOL) Annual Conference, 26-29 October 2011, Denver, USA.

Quality of Life and Patient Reported Outcomes in Cancer Research and Clinical Practice (Keynote talk. 7th International Head and Neck Quality of Life Workshop, 4-5 November 2010, Liverpool, UK.

Patient-reported outcomes in cancer research. (Invited presentation) 15th Congress of the European-Cancer-Organization/34th Multidisciplinary Congress of the European-Society-for-Medical-Oncology, Berlin, GERMANY, 20 Sep 2009 – 24 Sep 2009. EJC Supplements. 7. (Sep 2009)

Recent advances in Psychooncology. (Invited presentation) 4th European International Kidney Cancer Symposium, Kidney Cancer Association 8-9 May 2009, Berlin, Germany

Monitoring of patient self-reported symptoms and functioning in oncology practice. (Invited presentation) King’s College Department of Palliative Care, Masterclass seminar, 25 March 2009

A pilot study to arrive at consistency of EORTC QOL response scales in Spanish using the Delphi method. International Society for Quality of Life Research (ISOQOL) Annual Conference, New Orleans, USA, abs 23/1576, A 57, Oct 2009

Health-related quality of life (HRQOL) in non-small cell lung cancer (NSCLC): An update of a systematic review on methodological issues in randomized controlled trials (RCTs). 46th Annual Meeting of the American Society of Clinical Oncology (ASCO), FLA (USA), 1 June 2009, J Clin Oncol 27:15s, 2009 (suppl; abstr 9604)

Effectiveness of values clarification techniques to enhance informed decision making. (Oral presentation) 5th International Shared Decision Making conference 14-17 June 2009, Boston, USA

Patient-Reported Outcomes in daily oncology practice. Invited by Uruguayan commission against cancer, Montevideo, Uruguay 24 October 2008

Patient-reported outcomes and quality of life measurement in clinical oncology practice. (Invited presentation) National Cancer Network Development Programme, 16-17 October 2008, Workshop 25, Renaissance London Heathrow Hotel

Update on the Quality of Life study and developments in QOL research. SUPREMO Annual Investigators’ meeting, 20 June 2008, Edinburgh, UK

An introduction to Quality of Life assessment in oncology clinical trials. (Invited presentation) British Gynaecological Cancer Society Spring Conference 2008, 23 May 2008, Canterbury, UK

Patients’ and doctors’ attitude to QOL assessment in oncology practice. (Invited presentation) British Gynaecological Cancer Society Spring Conference 2008, 23 May 2008, Canterbury, UK

Patient-Reported Outcomes and Quality of Life measurement in Clinical Oncology practice. (Invited presentation) Education session Patient-Reported Outcomes in Oncology 1 June 2008; 44th ASCO Annual Meeting, May 30 – June 3, 2008, Chicago, Illinois;.

Discussant in Session Patient and Survivor Care. June 2 2008, 44th ASCO Annual Meeting, May 30-June 3, 2008, Chicago, Illinois

G. Velikova, S. Sheppard, L. Campbell, A. Smith, N. Awad, P. Selby, J. Brown. Randomized trial of quality-of-life measurement in oncology practice: Do oncologists need to know? (Poster presentation) 44th ASCO Annual Meeting May 30 – June 3 2008, Chicago, IL. J Clin Oncol 26: 2008 (May 20 suppl; abstr 9586)

Research issues in psychosocial and physical functioning in people with cancer. (Invited presentation) Symposium with Prof Veronica Fialka-Moser. Society for Research in Rehabilitation, Summer meeting 3-4 July 2007, Leeds.

Applications of electronic Patient-Reported measurements in daily oncology practice. What are the benefits? Invited lecture at The Inaugural PROMIS Conference, Building Tomorrow’s Patient-Reported Outcome Measures, September 11–13, 2006, Gaithersburg, Maryland, USA.

How to fund and set up a randomised psychosocial clinical trial. (Invited presentation) National Cancer Research Institute (NCRI) Cancer Conference, Birmingham, 7-10 October 2006, NCRI Psychosocial Oncology Clinical Studies Development Group.

Update on quality of life research. (Invited lecture) Trans-Pennine Palliative Care Research Network, 29 November 2006, Meadowhall, Sheffield.

Informing Physicians of Cancer Patients Quality of Life – Physicians’ Attitude, Effects On Communication And Decision Making. Symposium at 13th Annual Meeting of International Society for QOL Research, 10 14 October 2006, Lisbon, Portugal

Patient and physician preferences for communication during cancer treatment. (Poster presentation) National Cancer Research Institute (NCRI) Cancer Conference, Birmingham, 7-10 October 2006.

The clinical value of quality of life assessment in oncology practice – a qualitative study of patient and physician views. (Poster presentation) National Cancer Research Institute (NCRI) Cancer Conference, Birmingham, 7-10 October 2006.

Patients’ and Health Care Professionals’ (HCPs) perspectives on the most important quality of life issues in bone metastases. (Oral presentation) 13th Annual Conference of the International Society for Quality of Life (ISOQOL) Research taking place October 10 – 14, 2006 in Lisbon Portugal.

Early phase in the development of a bone metastases quality of life module. (Poster presentation) 13th Annual Conference of the International Society for Quality of Life (ISOQOL) Research taking place October 10 – 14, 2006 in Lisbon Portugal.

Patients’ and Health Care Professionals’ Perspectives on the Most Important Quality of Life Issues in Bone Metastases. (Oral presentation) 16th Annual Provincial Conference on Palliative and End-of-Life Care, Humber and Ontario Palliative Care Association, April 23-25, 2006, Toronto, Canada.

Measurement of health-related quality of life and patient-reported outcomes in cancer. (Keynote speaker) 6th meeting of International Society of Geriatric Oncology, 29 September – 1 October 2005, Geneva, Switzerland

Implementation of results from quality of life studies. (Keynote speaker) International Society for Quality of Life Research (ISOQOL) Annual Conference 19-22 October 2005 San Francisco, USA.

Routine symptom assessment, subsequent communication and patient well-being. (Invited presentation) National Cancer Research Institute (NCRI) Cancer Conference, 2-5 October 2005, Birmingham.

Implementation of results from quality of life studies. (Invited plenary presentation). International Society for Quality of Life Research (ISOQOL) Annual Conference, October 19-22, 2005, San Francisco, California USA.

Routine symptom assessment, subsequent communication and patient well-being. (Invited oral presentation) National Cancer Research Institute (NCRI) Cancer Conference, 2-5 October 2005, Birmingham, UK.

Measurement of health-related quality of life and patient-reported outcomes in cancer. (Invited plenary presentation). 6th meeting of the international Society of Geriatric Oncology September 29 – October 1, 2005, Geneva, Switzerland.

Distress and social support over time in newly diagnosed cancer patients. (Poster presentation) British Psychosocial Oncology Society (BPOS) Annual Conference, December 2005, Brighton; Psycho-oncology 2005, 14: 1086

Changes in reported social difficulties in the year following cancer diagnosis. (Poster presentation) British Psychosocial Oncology Society (BPOS) Annual Conference, December 2005, Brighton; Psycho-oncology 2005, 14: 1086

Informing physicians of cancer patients quality of life (QOL)- effects on discussion of psychological issues. (Poster presentation, winner of the Best poster award) British Psychosocial Oncology Society (BPOS) Annual Conference, December 2005, Brighton; Psycho-oncology 2005, 14: 1088

The factor structure and scoring of the GHQ12: A Rasch Analysis. (Poster presentation) British Psychosocial Oncology Society (BPOS) Annual Conference, December 2005, Brighton; Psycho-oncology 2005, 14: 1084

Informing physicians of cancer patients quality of life (QOL)- effects on discussion of psychological issues and referral patterns to psychosocial services. (Poster presentation) International Society for Quality of Life Research (ISOQOL) Annual Conference, October 19-22, 2005, San Francisco, California USA; Abstract No 1699; Qual Life Res 14 (9) 2005, p 2114.

Preliminary results of the design and development of an EORTC Information questionnaire: the EORTC QLQ-INFO 26. (Poster presentation) International Society for Quality of Life Research (ISOQOL) Annual Conference, October 19-22, 2005, San Francisco, California USA; Abstract No 1699; Qual Life Res 14 (9) 2005, p 2114.

Informing physicians of cancer patients’ quality of life (QOL)-effects on doctor-patient communication and decision making. (Poster presentation) National Cancer Research Institute (NCRI) Cancer Conference, 2-5 October 2005, Birmingham.

Deprivation, Social Difficulties, Psychological distress and cancer: 3 questionnaire studies of 609 patients. (Poster presentation) National Cancer Research Institute (NCRI) Cancer Conference, 2 5 October 2005, Birmingham

An item bank to measure psychological distress in cancer patients. (Poster presentation) National Cancer Research Institute (NCRI) Cancer Conference, 2-5 October, 2005, Birmingham

Developing an item bank to measure psychological distress in cancer patients using Rasch models. (Poster presentation) 2005 ASCO Annual meeting, Florida, USA

Routine measurement of quality of life in oncology practice – a randomised controlled trial. (Invited presentation) 4th UICC World Conference for Cancer Organisations, Dublin, 17 November 2004

Measuring Quality of Life in Daily Clinical Practice. (Invited presentation) 15th MASCC (Multinational Association of Supportive Care in Cancer) International Symposium, June 18-21 2003, Berlin, Germany.

Focus Groups: Doctor and Patient Views on Routine Quality of Life Measurement in Oncology Practice. (Poster presentation) 7th World Congress of Psycho-Oncology, 25-28 August 2004, Copenhagen, Denmark

Routine measurement of quality of life in oncology practice – a randomised controlled trial. (Invited presentation) 4th UICC World Conference for Cancer Organisations, Dublin, 17 November 2004

Content analysis of doctor-patient communication during oncology consultations. (Oral presentation) British Psychosocial Oncology Society (BPOS) Annual Conference, 2-6 December 2002, Harrogate, UK. Psycho-Oncology Volume 12, Issue 6 (September 2003), p637

Rasch analysis of quality of life data: Implications for clinical significance. (Poster presentation) British Psychosocial Oncology Society (BPOS) Annual Conference, 2-6 December 2002, Harrogate, UK. Psycho-Oncology Volume 12, Issue 6 (September 2003), p 635

Patients’ and doctors’ attitude to the routine use of Quality of Life (QL) assessment in oncology practice. (Oral presentation) 1st Congress of European Federation of Psychosocial Oncology Societies (EFPOS), 11-13 September 2003, Glasgow, UK

Measuring quality of life in routine practice improves communication and patient well-being – A review of several studies. (Oral presentation) 10th International Society for Quality of Life Research (ISOQOL) Annual Conference, October 2003, Prague, Czech Republic

Measuring Quality of Life in Daily Clinical Practice. (Invited presentation) 15th MASCC (Multinational Association of Supportive Care in Cancer) International Symposium, June 18-21 2003, Berlin, Germany.

A randomised study of quality of life measurement in oncology practice – effects on patient well-being and process of care. (Oral presentation) ASCO 2003 Annual Meeting; Abstract No: 2926 . http://www.asco.org/ac/1,1003,_12-002514-00_18-002003-00_19-00408,00.asp, accessed 29.08.2003)

 

Chapters

 

Bottomley A, Coens C, Fletchner H, Velikova G. Chapter 17: Quality of life issues. European Society for Medical Oncology Handbook of cancer diagnosis and treatment evaluation. Eds H-J Schmoll, L Van’t Veer, J Vermorken, D Schrijvers. Informa Healthcare, New York London, 2009 pages 141-146

Velikova G. Part 2 Management of Early Breast cancer. Patient Health Considerations. In: Baum M, editor. Lectures in Early Breast Cancer. London: Current Medicine Group Ltd.; 2006. p. 21-34.

Sanders R, Velikova G, Smith A, Stark D, Wright EP, Randerson Moor J, Bishop DT, Selby P. Introducing the Measurement of Quality of Life into Clinical Practice: Technology and Mechanisms. In: Germ Cell Tumours, Harnden P, Joffe J, Jones WG, eds. V. London: Springer-Verlag London Limited 2001; 196-208.

Velikova G, Selby P. The role of chemotherapy in metastatic renal cancer – in ‘Management of Urological Malignancies’ Hamdy FC, Basler JW, Neal DE, Catalona WJ (eds.), Churchill Livingstone (London, Edinburgh, New York, Philadelphia, St Louis, Sydney, Toronto), 2002, 337-347.

 

Research Grants

 

2012-2015

Real-time Electronic Patient Outcome ReporTing of adverse events in UK cancer trials. (REPORT UK)

Cancer Research UK

 2012-2013

Using patient experiences to inform the development and integration of a new electronic reporting system

Leeds Teaching Hospitals Charitable Foundation

2011-2012

electronic Co-morbidity Assessment System (eCAS) , a one year service development project.

National Cancer Intelligence Network

2010-2012

Towards safer delivery and monitoring of cancer treatments. Electronic patient self-Reporting of Adverse-events: Patient Information and aDvice (eRAPID)

National Institute for Health Research, Programme Development Grant

2009-2012

Electronic Patient-reported Outcomes from Cancer Survivors (ePOCS): a feasibility study

Macmillan Cancer Support

2010-2012

Evaluating the needs of patients living with chronic cancer: interviews and survey development

Dimbleby Cancer Care

2009-2010

Feasibility of an expressive writing intervention for older women’s body image concerns

Breast Cancer Campaign

2008-2010

Using the internet for information exchange: design and evaluation of a website for use in follow up of cancer patients at low risk of recurrence

National Institute for Health Research, Research for Patient Benefit

2007-2009

The social impact of cancer on people of south Asian origin

National Institute for Health Research, Research for Patient benefit

2007-2012

Programme Grant Psychosocial Oncology and Clinical Practice Research Group. Routine assessment of symptoms, functioning, social difficulties and quality of life of cancer patients to improve the process and outcomes of care.

Cancer Research UK

2006-2011

COMPASS Supportive and Palliative Care Research Collaborative. Complex interventions in supportive and palliative care: development, evaluation and implementation.

National Cancer Research Institute

 

Teaching

 

Galina is involved in teaching of undergraduate medical students and junior doctors within Oncology.

 

Research Students

 

Academic clinical trainees, Alex Gilbert, Vinton Cheng

 

PhD students, Emma Ingleson, Sally Taylor, Elena Takeuchi

 

MD  Tas Kanatas, MSc Hiba Fatayer

 

Research and Professional Activities

 

Committees

 

Current

2008 – present Member, Cancer Research UK Population Sciences Committee

2007 – present Chair, NCRI Psychosocial Oncology Clinical Studies Development Group subgroup on Impact of side-effects of cancer treatment

2003 – present Member, UK National Cancer Research Institute (NCRI) Psychosocial Oncology Clinical Studies Development Group

2001 – present Member, EORTC Quality of Life Group Executive Committee

1994 – present Member, European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group

 

Recent

2008 – 2011 Chair, EORTC Quality of Life Group Executive Committee

2008 Faculty member, annual conference American Society of Clinical Oncology (ASCO) (educational session presenter& discussant)

2007 Co-chair, ISOQOL Special Interest Group on using patient-reported outcomes in clinical practice

2006 – 2010 Chair British Psychosocial Oncology Society (BPOS)

2005 – 2008 Board member, International Society for Quality of Life Research (ISOQOL)

2004 – 2008 Member Cancer Research UK PhD studentship committee.

2003 – 2006 Chair, EORTC Module Development Committee

 

 

 

Other experience and professional memberships

 

2006 – 2010 Chair British Psychosocial Oncology Society (BPOS)

2001 – 2004 Editor, EORTC Quality of Life Group Newsletter

1995 – present Member, Association of Cancer Physicians

 

 

In addition, Galina is regularly invited to review research grant applications by bodies including the Dutch Cancer Society, Medical Research Council, NIHR, Cancer Research UK and the Wellcome Trust. She is also approached to review manuscripts submitted for publication by a wide range of journals, including the European Journal of Cancer, the Journal of Clinical Oncology, International Journal of Cancer, Cancer, the Lancet, Quality of Life Research and others. She is a member of the editorial boards for the European Journal of Cancer, Clinical Oncology and Psycho-oncology.